Our Sensation Celebration events exemplify the determination, dedication and triumph that families raising children with SPD face daily. Help support these families by participating in our annual event.
October is National Sensory Awareness month, however we know that many of you may want to do a summer walk event or combine it with a special event like a birthday party or Bar Mitzvah. Many of our generous supporters have asked for a donation in lieu of a gift for these types of events, which in turn educates friends and family about SPD. It doesn’t matter what time of year you plan your event, just be creative and have fun with whatever you choose to do.
Planning an awareness event is easy with all the tips and tools provided on the Sensation Celebration organizer page of our website. Check out past events on the main Sensation Celebration page for some great ideas.
Plan a small event with your family or organize a large event with help from friends and community sponsors. Whatever you do, don’t forget to let us know. We will advertise all the events on our website to give you more exposure. Email Susanne with any questions you may have and provide her with the details of your event.
Please help us continue our mission of conducting research, educating the world and providing hope and help for children and families living with Sensory Processing Disorder.
World-wide awareness means early intervention, services, and hope for the future of our children.
For more information visit www.spdfoundation.net/celebration2014.
SPD University is your destination for the latest online courses developed by the leading authorities on Sensory Processing Disorder. Choose from a rich set of e-learning courses for professionals and parents that are accessible 24/7 and AOTA approved for Continuing Education Credits.
August BONUS: Dr. Lucy Jane Miller’s Charlotte Symposium Presentation - Enrich the World One Family at a Time is FREE with any purchase of $50 or more.
Receive additional savings all year long but through the month of August get 20% off all purchases! See how.
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Michele Gianetti: Life With SPD and Dyspraxia – June 26, 2014
This is my first post in a while due to the recent death of my beloved Dad and then following immediately on its heels was the start of summer. Wow, it was quite the emotional and exhausting Spring.
I think I am just getting my “sea-legs” for Summer. We started the summer with a biking camp for Elizabeth.
Early Research Findings Demonstrate the Value of Treatment for Sensory Processing Disorder
The SPD Foundation has just released preliminary results documenting the effectiveness of the STAR treatment model for children with SPD. Significant improvements were reported in adaptive behavior and emotional functioning after intensive, short-term occupational therapy.
Ninety-eight children were assessed at home, school and in the community using the Adaptive Behavior Assessment System II, a comprehensive, norm-referenced tool for assessing adaptive behavior and skills. Results show that after 30 therapy sessions, 3-5 times a week, children ages 2-13 improved an average of twelve percentile points across the parent-report scale. Overall, children demonstrated significant change, moving from the ‘below average’ range to within the typical range after treatment.
Behavior problems such as anxiety, attention, hyperactivity and aggression were also measured during the same timeframe using the Behavior Assessment System for Children – 2nd ed., with gains of between 13 and 18 percentile points on all clinical composite scores. Overall, children were reported to have significantly fewer problematic behaviors after treatment.
These findings show changes in adaptive behavior and emotional functioning, both of which are directly related to improvements visible in daily life.
The SPD Foundation is committed to enhancing the quality of life for children and adults with SPD and their families by conducting and collaborating in rigorous research into the causes, diagnosis and treatment of SPD.
Is SPD a Real Medical Condition?
New Republic just published an article “Is Sensory Processing Disorder a Real Medical Condition?” We hope the article fosters thought and dialogue, and we urge readers to investigate all viewpoints.
In response, the Huffington Post posted a story from a parent who does think SPD is a real medical condition — telling a personal story of what SPD means for their family.
The SPD Foundation and STAR Center are dedicated to supporting evidenced-based research to understand SPD and to find effective treatments so that children and families can get the tools and help they need to manage a debilitating condition that can affect their education, socialization and livelihood.
Please help – the article above is proof that the future holds promise for answers about SPD!
If each person receiving this email were to give just $10, we would reach our goal of $72,000.
Why do we need funding?
Donations will be used to provide therapy and cover expenses for travel to the University of California San Francisco (UCSF) to participate in having brain scans before and after therapy.
We are so encouraged by the groundbreaking study by UCSF researches last July that we want to delve deeper. The study showed MRI scans which documented differences in the brains of children with SPD from the brains of children with Autism and ADHD–confirming a biological basis for the disorder.
Earlier this month “The Washington Post” published an article about the legitimacy of SPD. SPD affects more than four million children in the United States alone—an average of one child in every classroom. And yet there’s debate over whether SPD is a discrete medical disorder. The more concrete evidence we can provide, will ultimately enable families to access resources and help for SPD.
Just $10 will go a long way in reaching our goal.
Text SPD to 501501 and $10 will support this research.
A $10 charge will appear on your phone bill.*
Or, you can donate $10 or more here with a secure online donation: https://www.coloradogives.org/helpspd
Please donate $10 or more today and help show the real impact of therapy.
*A one-time donation of $10.00 will be added to your mobile phone bill or deducted from your prepaid balance. Donor must be age 18+ and all donations must be authorized by the account holder (e.g. parents). By texting YES, the user agrees to the terms and conditions. All charges are billed by and payable to your mobile service provider. Service is available on most carriers. Donations are collected for the benefit of the SPD Foundation by the Mobile Giving Foundation and subject to the terms found at www.hmgf.org/t. Message & Data Rates May Apply. You can unsubscribe at any time by texting STOP to short code 501501; text HELP to 50101 for help. Private policy.
We Hit a Milestone!
We hope to grow that number as we continue to strive to help others with SPD and share what we know. We would love it if you would like us!
Dr. Lucy Jane Miller submitted an article “Fact or Fiction: The Truth About Sensory Processing Disorders” online in Mediaplanet’s Disability Empowerment campaign distributed by The Washington Post. Visit the site to learn more about overcoming obstacles often faced by people with disabilities.
Tournament of Hope was Fun and Exceeded its Goal
Our second annual Tournament of Hope FORE SPD Foundation was a sensational success! Thank you to all who came out and enjoyed a fun filled morning on the beautiful Pradera course, especially our Tournament Chair, Joan Miller and our Celebrity Chair former Denver Bronco, Brandon Stokley. We had over 80 golfers who helped raise awareness for SPD and the $27,000 raised will go towards our research. And the event was on the CBS Denver news!
You can check out pictures from the event on our Facebook page!
Thank you to all of our sponsors, especially our Par Sponsors — Summit Bank and Trust and Miller and Steiert, P.C. for their continued support. We can’t wait to see everyone again next year.
Save the Date for Playground Rock!
Saturday, August 16, 11:00am – 2:00pm
Kids of all ages will have a blast playing on our unique playground equipment.
KIDS ages 3 to 17: $5
Kids under 2 FREE
This popular event raises money for the Sensory Processing Disorder Foundation and STAR Center.
For more information and to sign up, please visit:
Picnics on the Playground
We are so excited to let you know about a couple of opportunities to have fun at STAR Center’s Sensory Playground, share time with other kids and parents, and chat with Dr. Lucy Jane Miller. Playground picnic time will be happening all summer (weather permitting)! Bring your picnic and something to sit on and have a great time. Please RSVP to 303-221-7827. Walk-ins also welcome if you can’t reach us in time to RSVP.
Lunch with Lucy
August 6 (Karin Buitendag will be standing in for Lucy)
Evening: Picnic in the Park with Lucy
We look forward to seeing you!
New Republic recently published the article titled “Is Sensory Processing Disorder a Real Medical Condition”. We hope the article fosters thought and dialogue, and we urge readers to investigate all viewpoints. In response, the Huffington Post posted a story titled, “How I Know That Sensory Processing Disorder is Real” from a parent who does think SPD is a real medical condition — telling a personal story of what SPD means for their family. The SPD Foundation and STAR Center are dedicated to supporting evidenced-based research to understand SPD and to find effective treatments so that children and families can get the tools and help they need to manage a debilitating condition that can affect their education, socialization and livelihood.
I think we’re about to make adult SPD blogging history here. I am proud to present to you a guest post by my husband Josh about living and loving someone with SPD (that’d be me). SPD partners are not alone in their efforts to understand the complexities of the condition as much as SPDers are not alone in their own sensory struggles and triumphs. By sharing our stories, we remind ourselves that what may feel like isolated and unusual experiences are quite common for many.
What’s it like to be married to a person with SPD? Step into Josh’s funny, wacky world and take a peek.
Greetings, Coming to My Senses readers!
I have commandeered this blog, and if nobody moves, nobody gets hurt! I don’t want any funny business! Are you ready? Good.
My name is Josh Erich, and as you may or may not know, I am married to the lovely Rachel Schneider, one of the up-and-coming names in the world of SPD, amassing an army of followers set to destroy all strobing lights and loud noises and icky feeling things from existence. Some of these people have gone so far as to ask Rachel about me and what it’s like for me to be married to a person with SPD.
Our now 13 year old adopted son was diagnosed with SPD at age 3, although at that time, it was the “flavor of the month” disorder and just about every little boy was diagnosed with it, so we more or less discounted that diagnosis. But, as he got older and older, we began to realize that was exactly what was causing so many of his baffling behaviors.
We started to read up about it, starting with the eye opening and still relevant The Out of Sync Child by Carol Stock Kranowitz. The more we read, the more we saw our child. We also found our way to a fantastic website, www.spdfoundation.net The Sensory Processing Disorder Foundation which has a checklist of all the symptoms of SPD. When our son was very young, we checked just about all of them.
A Different Course Will Be Offered FREE Each Month From June-August!
June BONUS: Course #100 – In the Clinic with Dr. A. Jean Ayres is FREE with any purchase of $50 or more. Watch for new specials in June and July.
And there’s more…
Members receive 20% off June-August in addition to FREE access to Course #100! Become a member today and receive the extra summer specials too.
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